Monday - a new family (Tuesday, 24 May 2011 at 07:51)
From original facebook diary
Charlotte's consultant had a another chat with my yesterday to give me an idea of roughly the treatment going forward. Charlotte is on the lowest regime of chemo due to her age & being a girl but also as her platelet count wasn't the worst level. As long as her bone marrow results progress as they hope she will stay on that level. If not, she will move from Regime A to Regime C the highest which involves strongest drugs & longer periods...so praying for continuing good progress. Her chemo will be pretty much ongoing for the first 6-9 months, with the 'strongest' session starting at Week 17 for 7 weeks; if she doesn't respond as hoped she will have to repeat that 7 weeks.
The good news is that all being well at the end of this week she will be able to be transferred back to Poole. She will then only have to come to Southampton for her regular bone marrow biopsy or if Poole feel she needs to see the Consultant here. Being at Poole will make things a lot easier for us for me & for visitors.
Charlotte's temperature shot up yesterday morning and she didn't eat, watch tv or anything til about 3pm. She's been put straight onto IV antibiotics as a precaution and they await 48 hour cultures of her blood to check for infection. Thankfully prayers were answered and she completely picked up late afternoon, ate her Mcdonalds Happy Meal & was playing til 9pm!
The ward we are on has great facilities and all the staff, playworkers etc are so good with the children. Great care is put into the Psychological side of the illness & also work with siblings. I've been getting to know the parents...they say it's like being in a family here....but a family that no-one wants to be in. When I hear of some of the other children's cancer I do really Thank God so much for Charlotte's diagnosis. If she had to have some form of cancer, she has the most common & the one with the highest cure rate. I've met two little girls in particular and I can't imagine how their families feel.
Well we only kept our private room for one night as a poorly baby arrived, so we're back in with the snoring Dad! Still not got my appetite back...this experience having more of an effect than any diet! lol...only joined Slimming World two weeks ago, be interesting to see by the time I get home how much weight I've lost? Mum coming early so going to treat myself to full English for breakfast on Tuesday, maybe that will tempt me!
The downside of moving to Poole is there's no laptops as far as I'm aware. Its a shame because its so good to be able to come on FB and see messages from everyone & also daily verses etc from some of the pages I'm a fan of. As I'm writing this early Tuesday morning this this one from Sister in Christ caught my eye;
"When you’re barely holding on, when you can’t handle one more day of stress, when you’re about to blow—relying on God’s Goodness and Mercy will pacify your anxieties. They may not come when you want or the way you want, but God’s provisions are always certain. That’s a promise I’ve experienced in my own life and you can too, because whom God loves, He loves and defends to the end." (An Untroubled Heart) ~~Jennifer
Charlotte's consultant had a another chat with my yesterday to give me an idea of roughly the treatment going forward. Charlotte is on the lowest regime of chemo due to her age & being a girl but also as her platelet count wasn't the worst level. As long as her bone marrow results progress as they hope she will stay on that level. If not, she will move from Regime A to Regime C the highest which involves strongest drugs & longer periods...so praying for continuing good progress. Her chemo will be pretty much ongoing for the first 6-9 months, with the 'strongest' session starting at Week 17 for 7 weeks; if she doesn't respond as hoped she will have to repeat that 7 weeks.
The good news is that all being well at the end of this week she will be able to be transferred back to Poole. She will then only have to come to Southampton for her regular bone marrow biopsy or if Poole feel she needs to see the Consultant here. Being at Poole will make things a lot easier for us for me & for visitors.
Charlotte's temperature shot up yesterday morning and she didn't eat, watch tv or anything til about 3pm. She's been put straight onto IV antibiotics as a precaution and they await 48 hour cultures of her blood to check for infection. Thankfully prayers were answered and she completely picked up late afternoon, ate her Mcdonalds Happy Meal & was playing til 9pm!
The ward we are on has great facilities and all the staff, playworkers etc are so good with the children. Great care is put into the Psychological side of the illness & also work with siblings. I've been getting to know the parents...they say it's like being in a family here....but a family that no-one wants to be in. When I hear of some of the other children's cancer I do really Thank God so much for Charlotte's diagnosis. If she had to have some form of cancer, she has the most common & the one with the highest cure rate. I've met two little girls in particular and I can't imagine how their families feel.
Well we only kept our private room for one night as a poorly baby arrived, so we're back in with the snoring Dad! Still not got my appetite back...this experience having more of an effect than any diet! lol...only joined Slimming World two weeks ago, be interesting to see by the time I get home how much weight I've lost? Mum coming early so going to treat myself to full English for breakfast on Tuesday, maybe that will tempt me!The downside of moving to Poole is there's no laptops as far as I'm aware. Its a shame because its so good to be able to come on FB and see messages from everyone & also daily verses etc from some of the pages I'm a fan of. As I'm writing this early Tuesday morning this this one from Sister in Christ caught my eye;
"When you’re barely holding on, when you can’t handle one more day of stress, when you’re about to blow—relying on God’s Goodness and Mercy will pacify your anxieties. They may not come when you want or the way you want, but God’s provisions are always certain. That’s a promise I’ve experienced in my own life and you can too, because whom God loves, He loves and defends to the end." (An Untroubled Heart) ~~Jennifer
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