Good day :-) Friday, 27 May 2011 at 19:48
Taken from my original diary on Facebook
Its good to be able to say that today has been a good day. I apologise for writing this in the public domain but it was something that was becoming a real dilemma so feel I need to note it in my diary for today. One of the side effects of one of Charlotte's chemo med's is constipation, on top of that Charlotte didn't want to do it on the hospital toilet and has been holding it in until she could go home & do it on our toilet....so it had been a week! We tried all sorts of persuasion & suggestions so the Dr's took steps with medication to 'move' things on so to speak...a dose of Senna last night and Charlotte couldn't hold on any longer at 4am this morning. She woke again at 7 for toilet and then went back to sleep until 9am. The Dr came shortly after and thankfully told us we we're first on the list for theatre this morning for bone marrow biopsy, lumbar puncture, chemo into spine and change her dressing on her central line. I took her in 9.15 and and she came back at 10am, and promptly asked for her dinner!
The difference in her today has been amazing, hadn't hoped for so much. the pain she was experiencing before in her back & legs has settled, so she's been walking more than she has in several weeks. The steroids have kicked in more with her appetite increasing drastically. She's been in the playroom since 1pm and is still now here watching Tangled & sticking bits & pieces on an octupus picture at the moment.....the steroids can make them overactive...so a little concerned at what time she is going to 'slow down' & go to sleep tonight! lol
She's been taking a more of an interest and learning about her central line today from the doll & book they have...and she's chatting away to everyone...its soo nice to see :-)
The bone marrow biopsy results came back earlier this evening. Charlotte's Leukaemia is now down to 50% (from 100), if it had been down to 25% they wouldn't have done a biopsy next week and just waited to the end of her 5 weeks course. So she will have to have a biopsy next Friday here at southamton and it needs to be at 25% to keep on the current regime of chemo so really praying for this. I'm going to ask the Consultant in the morning if they are happy with 50%. As she has settled so well today we have asked to be transferred back to Poole tomorrow as Charlotte is very familiar with the hospital and when I asked if she wanted to go she said yes. we will miss the great facilities and support here on the childrens oncology ward at southampton but it will be so nice to be nearer home & see more visitors and I can can even go home to sort a few things out.
She's been taking a more of an interest and learning about her central line today from the doll & book they have...and she's chatting away to everyone...its soo nice to see :-)
The bone marrow biopsy results came back earlier this evening. Charlotte's Leukaemia is now down to 50% (from 100), if it had been down to 25% they wouldn't have done a biopsy next week and just waited to the end of her 5 weeks course. So she will have to have a biopsy next Friday here at southamton and it needs to be at 25% to keep on the current regime of chemo so really praying for this. I'm going to ask the Consultant in the morning if they are happy with 50%. As she has settled so well today we have asked to be transferred back to Poole tomorrow as Charlotte is very familiar with the hospital and when I asked if she wanted to go she said yes. we will miss the great facilities and support here on the childrens oncology ward at southampton but it will be so nice to be nearer home & see more visitors and I can can even go home to sort a few things out.
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| Finally up & about, playing in the toy phone box in the ward playroom |
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