Blood & Guts! LOL Thursday, 2 June 2011 at 20:31
Taken from my original diary on Facebook
We had an early wake up at 6 this morning but both enjoyed sleeping through the night for the first time since we first came into hospital.
Todays medical side of things relates to blood & guts!. Good news, Charlotte's haemaglobin is nearly at normal (so no longer anaemic). Bad news, her platelets are at an all time low, so she had to have another platelet transfusion particularly as she has a procedure tomorrow. If you've never seen a bag of platelets, they are an orangey colour...Charlotte calls it a drink of orange on Robbie Robot (the pump/stand) for Mr Wiggly (her central line).
Charlottes 'sore' throat seems to be getting worse, its quite red but not infected. They now actually suspect that it maybe caused by the high dose of steroids she's on. Steroids can irritate the gut causing acid/heartburn. Obviously a 3 year old can't explain that, so trying gaviscon and seeing if that settles it down. Thankfully Charlotte wasn't sick at all today for the first time this week, the chemo which was injected into her spine on Friday causes that so the effects obviously wear off by several days later & she's eaten much better today.
She was much better with the Specialist Dr Martin today, letting him check everything he wanted to and joining in conversation with him. He is really great at talking to the children & is a funny guy. We had a few visitors today with Elizabeth, Mum, June, Jim, Clive, Zoliswa & Nathi & Siyaka coming in, Charlotte enjoyed played with Nathe & Siyaka in the play room & particularly the sensory room.
Been let down a bit with the support side of things...partly cos of the bank holiday break & moving back to Poole, but been waiting 9 days for them to speak to me, and looks like it won't be til Monday now.
Good news is we're going to be allowed home for several hours a day on Saturday & Sunday, which will be really nice. Weather permitting I can take Charlotte out to the park or more likely Moors Valley. I'm also looking forward to getting to Church on Sunday morning.
Early night tonight as we have to leave by 7 in the morning to get back to Southampton for bone marrow biopsy & see our Consultant there. It'll be a nerve-wracking wait tomorrow for results as Leukaemia needs to be down to 25% to stay on the current (mildest) regime of chemo, so praying I can write about good news tomorrow night & not a setback.
Elizabeth gave me a verse this morning which God had given to her Psalm 34 v4; I sought the Lord, and he answered me; he delivered me from all my fears. Not to familiar with this Psalm but has been really good to read it today.
Charlottes 'sore' throat seems to be getting worse, its quite red but not infected. They now actually suspect that it maybe caused by the high dose of steroids she's on. Steroids can irritate the gut causing acid/heartburn. Obviously a 3 year old can't explain that, so trying gaviscon and seeing if that settles it down. Thankfully Charlotte wasn't sick at all today for the first time this week, the chemo which was injected into her spine on Friday causes that so the effects obviously wear off by several days later & she's eaten much better today.
She was much better with the Specialist Dr Martin today, letting him check everything he wanted to and joining in conversation with him. He is really great at talking to the children & is a funny guy. We had a few visitors today with Elizabeth, Mum, June, Jim, Clive, Zoliswa & Nathi & Siyaka coming in, Charlotte enjoyed played with Nathe & Siyaka in the play room & particularly the sensory room.
Been let down a bit with the support side of things...partly cos of the bank holiday break & moving back to Poole, but been waiting 9 days for them to speak to me, and looks like it won't be til Monday now.
Good news is we're going to be allowed home for several hours a day on Saturday & Sunday, which will be really nice. Weather permitting I can take Charlotte out to the park or more likely Moors Valley. I'm also looking forward to getting to Church on Sunday morning.
Early night tonight as we have to leave by 7 in the morning to get back to Southampton for bone marrow biopsy & see our Consultant there. It'll be a nerve-wracking wait tomorrow for results as Leukaemia needs to be down to 25% to stay on the current (mildest) regime of chemo, so praying I can write about good news tomorrow night & not a setback.
Elizabeth gave me a verse this morning which God had given to her Psalm 34 v4; I sought the Lord, and he answered me; he delivered me from all my fears. Not to familiar with this Psalm but has been really good to read it today.
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